ALS can affect muscles of movement (the limbs), speaking, swallowing, chewing and breathing.  To date, the cause and the cure are unknown.  Death comes as a result of respiratory failure, usually within 3 to 5 years after diagnosis.

In the fall of 2004, a multi-disciplinary ALS team was established at the Misericordia under the direction of Dr. Mark Heule- Respiratory and Critical Care Medicine and Dr. Wendy Johnston- Neurology and ALS Clinic (University of Alberta Hospital).  This satellite clinic of the University of Alberta ALS Clinic held its first clinic in January 2005.  The objective of this team was to provide persons with ALS with timely access to respiratory support and nutrition as lung function diminishes.  Physiotherapy and Occupational Therapy provide assessment and resources for mobility and independence.  Dietician and Speech-Language Pathology (SLP) assists with feeding and swallowing, SLP also assists with speech and communication needs as required.  Respiratory Therapy provides lung function studies, assessment of breathing during sleep, education about aids to breathing and secretion mobilization and initiation of non-invasive ventilation.  Spiritual Care, ALS Clinic Coordinator, ALS Society Representative and Social Work provide support to the patient regarding end of life issues and advance care planning.  All disciplines contact community home care to ensure smooth transition from hospital to home.  The majority of ALS patients are able to be managed in the home with adequate family and home support. 

Bi-level non-invasive ventilation offers improved quality of life and comfort by relieving shortness of breath for persons with ALS.  Bi-level helps provide a restful sleep every night, which allows for less sleepiness during the day, less fatigue and less laboured breathing when the person is off the treatment.  For persons with ALS with difficulty in speech, lower than normal lung volumes and shortness of breath, bi-level has assisted with communication with the family and caregivers.